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Terms of Use

The New England Consortium of Metabolic Programs (the Consortium) is an informal affiliation of healthcare providers, research scientists, and other health industry professionals collaborating to provide the best possible care and resources for patients with inborn metabolic disorders.

The information provided here on the Consortium’s web site (newenglandconsortium.org), is intended for educational purposes only.

Visitors’ Agreement
Your acceptance of these Terms of Use and your agreement to be bound by them is a requirement of and a prerequisite of your access to and use of this website. You agree to use this web site only in an authorized and legal manner.

Medical Disclaimer
Content which may be medical in nature is presented on this web site as general information only. The information provided here is not intended to, and does not constitute or imply medical or other advice. Readers of this web site planning to pursue any health-related treatment or course of action must first consult a properly licensed medical practictioner. The New England Consortium of Metabolic Programs and its officers, directors, volunteers, employees, web site operators and sponsors (the Consortium) does not promote or recommend any treatment, therapy, institution or health care plan.

Acute Illness Protocols
The care of acutely ill patients with metabolic disorders is complex and it is essential that a properly licensed metabolic specialist be consulted as rapidly as possible. The acute illness protocols provided on this web site are informational only, and do not constitute or imply medical or other advice.  These protocols are intended to be used only as educational guidelines for licensed healthcare professionals treating newborns at risk for metabolic disorders.

The New England Consortium of Metabolic Programs is committed to insuring that our web site visitors’ privacy is protected.  Please read our Privacy Policy to learn more.

Copyright & Permissions
The content of this website must not be reproduced, distributed, or displayed, nor derivative works prepared based upon it, without first obtaining the written permission of the New England Consortium of Metabolic Programs. If you are interested in using our materials, please complete and submit a Permission Request Form. Please allow 14 days for a response.

Liability Limitations
You agree that you will hold the Consortium harmless from all claims arising out of or related to your access or use of, or your inability to access or use, this web site or the information contained in this web site or other web sites to which it is linked. While we try to maintain only current and accurate information, we disclaim any implied warranty or representation about its accuracy or completeness, or appropriateness for a particular purpose. As the recipient of this information, you assume full responsibility for using the information at this web site, and you understand and agree that the Consortium is neither responsible nor liable for any claim, loss, or damage resulting from its use. Therefore, the use of any information obtained from this web site shall be at the sole risk of the user, based upon their independently exercised judgment.

Third Party Web Links, Products, and Services
The Consortium provides links from this web site to other web sites not under its control. These links are provided for convenience of reference only, and are not intended as an endorsement by the Consortium. Most web sites state their own Terms of Use and Privacy Policies, which should be independently observed. The mention of specific products or services on the Consortium web site does not constitute or imply a recommendation or endorsement by the Consortium, unless it is explicitly stated.

Computer System Stability
The Consortium does not warrant against human and machine errors, omissions, delays, interruptions or losses, including loss of data, nor does the Consortium warrant that web sites linked to will be free of infection by viruses or other harmful mechanisms that manifest contaminating or destructive properties. Users of the Consortium web site are responsible for (1) implementing and maintaining adequate procedures and checkpoints to satisfy their particular requirements for accuracy of data input and output, (2) implementing and maintaining adequate procedures to protect against computer viruses, malware, and other software potentially harmful to their computers, and (3) maintaining a means external to the Consortium web site for the reconstruction of any lost data. The Consortium is not accountable for any loss of data resulting from system and network outages, file corruption, deletion or cancellation of services, or any other reasons.

Third Party Content
All users generating content posted on the Consortium web site agree to indemnify and hold the Consortium harmless from any claim, loss, or damages arising from the content. The views and opinions of third party content-creators do not necessarily state or reflect those of Consortium. The Consortium shall not be liable to any user or third party as a result of the exchange of any information,  for a claim of any kind, including defamation, disclosure of confidential information, negligence, or otherwise, despite where or how the claim arises. The posting of any information on the Consortium web site shall be at the sole risk of the user, based upon their independently exercised judgment.

Terms of Use Changes
The Consortium may amend or change these Terms of Use at any time.  Terms of Use updates will be posted here promptly.

Contact Us
If you have any questions or concerns about the Consortium’s Terms of Use, please contact us:

New England Consortium of Metabolic Programs
1 Autumn Street, Room 526
Boston, MA  02115

Vera Anastasoaie, BA, Administrator

Susan Waisbren, PhD, Director

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