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Newborn Baby’s Health PKU Nutrition & Recipes! Maternal PKU Research Study |
You can find additional information about planning and having a healthy PKU pregnancy on these web sites:
National PKU News
http://pkunews.org/
A comprehensive web site concerning most aspects of PKU, including tabs for support groups, research, and diet-related information
Save Babies Through Screening Foundation
http://savebabies.org/
Information about PKU and Newborn Screening (testing for disorders)
The National PKU Alliance
http://npkua.org/
The NPKUA is an organization that supports local efforts to raise PKU awareness, advocacy and education, while ultimately looking for a cure.
The New England Consortium of Metabolic Programs
http://newenglandconsortium.org/
The New England Consortium of Metabolic Programs, an informal affiliation of healthcare providers, research scientists, and other health industry professionals collaborating to provide the best possible care and resources for patients with inborn metabolic disorders.
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