If you are a teen or adult with PKU, or the parent of a child with PKU, the resources in this section can help you better handle the challenges of staying on-diet, keeping Phe levels low, and consistently taking the formula.
Special Summer Event! – PKU Cooking Class on August 9th, 2015!
WHEN: Sunday, August 9, 2015, 10am-2pm
WHERE: Cambrooke Therapeutics, 4 Copeland Drive, Ayer, MA 01432
WHAT: This special event is designed for people with PKU and their families. You’re Invited!
Join us for an interactive, PKU cooking class. Hear Kendra Bjoraker, PhD, of 3:1 Neuropsychology Consultants, LLC, speak about “PKU, Phe Levels and the Brain”
Join Chef Sarah Sullivan for a day of hands-on cooking the low-protein way! You will take away useful cooking and nutritional tips, as well as a variety of easy and delicious recipes for all members of the family to enjoy. At the end of the event, enjoy the recipes prepared that day! Low-Phe meal will be provided.
COST: There is no cost to attend this event! It is sponsored by BioMarin Pharmaceutical Inc.
REGISTRATION: Please register now, space is limited! To reserve your space call 855-PKU-CALL (855-758-2255) or visit www.pkuevent.com/aye Limit of three family members or friends per each person with PKU. Childcare will be provided during this event.
PKU Nutrition Resources
PKU Diet & Formula
Learn about what’s actually in the formula, why you have to take it consistently, new improvements in formula options, and tips for how to manage taking it on a daily basis.
This big collection of recipes is for adults, teens, and kids. It was developed as part of the PKU Resource Mothers program at Boston Children’s Hospital. Many of the recipes’ authors are women who have PKU, and who managed healthy pregnancies!
PKU Diet Resources
A useful list of special food vendors and suppliers.