• Share

PKU Nutrition

If you are a teen or adult with PKU, or the parent of a child with PKU, the resources in this section can help you better handle the challenges of staying on-diet, keeping Phe levels low, and consistently taking the formula.

You’re Invited! – Join us for an Interactive PKU Cooking Class!

Weekend cookingKathy Cody, Registered dietician and PKU Account Manager at BioMarin, is hosting this fun & informative class:

WHAT: Join Chef Kevin Brown for a day of hands-on cooking the low-protein way! You will take away useful cooking and nutritional tips, as well as a variety of easy and delicious recipes for all members of the family to enjoy. At the end of the event, enjoy the recipes prepared that day!

Hear Eileen, Blakely, MS, RD, speak about “PKU and You: Advocating for Excellent Care.”

WHEN: Saturday, June 18, 2016
10AM – 2PM
Low-Phe meal will be provided

WHERE: Cambrooke Therapeutics
4 Copeland Drive
Ayer, MA 01432

COST: This special free event is designed for people with PKU and their families. It’s sponsored by BioMarin Pharmaceutical Inc.

REGISTRATION: Register Now – Space is limited!
To reserve your space call 855-PKU-CALL (855-758-2255) or visit http://www.pkuevent.com/ayer/
Limit of three family members or friends per each person with PKU. Childcare will be provided.

PKU Nutrition Resources

PKU Diet & Formula
Learn about what’s actually in the formula, why you have to take it consistently, new improvements in formula options, and tips for how to manage taking it on a daily basis.

PKU Recipes!
This big collection of recipes is for adults, teens, and kids. It was developed as part of the PKU Resource Mothers program at Boston Children’s Hospital.  Many of the recipes’ authors are women who have PKU, and who managed healthy pregnancies!

PKU Diet Resources
A useful list of special food vendors and suppliers.

-- Previous PKU Newsletter