Welcome to the Children’s Hospital Boston Transition Toolkit! As a teenager ready for adulthood, you should begin to take control of how you handle your metabolic condition and your health in general. To start, read through these materials. You should begin to look for an adult-focused doctor to replace your pediatrician who only deals with childhood problems. This process of ﬁnding an adult-focused doctor is called a medical care transition and takes time and planning — but once it occurs, it is a great success.
Use the following forms to help achieve your medical care transition
What am I supposed to do with these forms?
Measure your health independence by taking the Health Readiness Assessment and over time try to answer yes to every question
Read up on your Metabolic Condition Basics and discuss possible adult-health problems with your doctors or nurses
Save these forms on your computer and USB ﬂash drive and bring the Transition Toolkit to every medical appointment
Keep the ﬂash drive in your wallet or purse and save any changes or updates
How will The Transition Toolkit help me?
Decide when you’re ready to act as your own health spokesperson
Prepare for doctor’s appointments and ﬁll out health forms
Talk to doctors and nurses about your medical condition and what roles they should play in your medical care
Keep track of all of your important medical and condition information
To get started, fill out the Health Readiness form.
This project was developed at Children’s Hospital Boston by Alison Logan, MA, and Susan Waisbren, PhD, Director of the New England Consortium of Metabolic Programs, with additional writing by Freedom Baird, MA. The project was supported by the New England Genetics Collaborative and their cooperative agreement with the US Health Resources and Services Administration (HRSA), grant number U22MC10980.