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Printed Booklets

Booklets currently for sale by the Consortium are:

Moving Forward: Your Guide to Galactosemia and Primary Ovarian Insufficiency (POI)Moving Forward: Your Guide to Galactosemia and Primary Ovarian Insufficiency (POI)
This comprehensive five-part guide, produced at Boston Children’s Hospital, contains sections for teens and women who have galactosemia and POI, and for their family members. The guide explains the symptoms and underlying causes in easy-to-understand terms, and outlines ways of getting the care and support you need. It also provides a list of resources, and a glossary of medical terms.
Full color, illustrated, 23 pages, 8.5”x11”, Cost $8, includes shipping

 

Newborn Screening Guide for Prenatal EducatorsNewborn Screening Guide for Prenatal Educators, Plus Prenatal Curriculum and Parents’ Guide
This eleven-page booklet was produced at Boston Children’s Hospital based on recommendations by the American Academy of Pediatrics.  It includes resources for parents, as well as information about each metabolic disorder including incidence rate, a brief definition, and recommended treatment options.
The booklet comes bundled with:
Newborn Screening Prenatal Curriculum
Five pages outlining ten goals
for prenatal educators when teaching expectant parents about newborn screening.
Follow-up to Newborn Screening Guide for Parents – Full color brochure
explains in easy-to-understand language why newborn screening for metabolic
disorders is essential, how it is done, how to understand the results, and what
parents can do if follow-up testing is recommended for their baby.
Reminder Card for Parents’ Baby Book – to remind new parents of the
importance of screening
Full color, illustrated, 18 pages total, 8.5”x11”, Cost $15, includes shipping

 

To place your order, print and fill out this form, and mail it with a check or money order payable to the New England Consortium of Metabolic Programs.  Please mail to the address shown below.

I would like to order ____ copies of
Moving Forward: Your Guide to Galactosemia and Primary Ovarian Insufficiency (POI)

I would like to order ____ copies of the
Newborn Screening Guide for Prenatal Educators, Plus Prenatal Curriculum and Parents’ Guide

Total enclosed as check or money order is: _________

Please ship to:

Full Name ___________________________________________________

Street Address _______________________________________________

City _________________________     State ______      Zip __________

E-mail ______________________________________________________

Phone ______________________________________________________

Mail completed form and a check or money order payable to the New England Consortium of Metabolic Programs.

New England Consortium of Metabolic Programs
1 Autumn Street, Room 526
Boston, MA  02115

 Feel free to contact us with any questions regarding your order at 617-355-7346.

The New England Consortium of Metabolic Programs brings together health care providers and scientists to provide the best possible care for patients with inborn metabolic disorders, and resources and support for their families. Proceeds from booklet sales fund the cost of producing and shipping the booklets. Thank you for your support!