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Annual Meeting Agenda - 2014

New England Consortium of Metabolic Programs
Annual Meeting
November 14, 2015

Imagine the Future: Innovations in the Assessment and Treatment of Metabolic Disorders

9:00-9:30 am: Registration, Tour of Industry Exhibits and a Chance for Chocolate

9:30-9:35 am: Welcome – Susan Waisbren, PhD, Boston Children’s Hospital

9:35-10:15 am: Brief Reports

  • UCD Study
  • Patient Advocates
  • Ultragenyx FAOD Study

10:15-10:30 am: Break and Tour of Exhibits

10:30-11:30 am: Keynote Address: Alexander Lin PhD — Non-invasive Neurochemistry in Phenylketonuria using Correlated Spectroscopy

11:30-12:00 pm: Patient Experience Featuring Galactosemia and Augmentative Communication — Emily and Julie Matarese and Rebecca McCarthy, MS, CCC-SLP

12:00-12:30 pm: Director’ Updates: Reports from the Directors of each of the Metabolic Clinics in New England

12:30-1:30 pm: Group picture, Lunch and Tour of Industry Exhibits

1:30-2:15pm: State Reports

2:15-3:15 pm: Group Discussion (Breakout sessions)

  • Nutrition
  • Medical/Public Health
  • Follow-up and Transition to Adult Healthcare (The Mitochondrial Transition Project)

3:15-3:30 pm: Wrap-up and Evaluations