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--Annual Meeting Agenda 2015


November 13, 2015

Blazing the Trail

9:00 – 9:15 am:         Registration, Tour of Industry Exhibits

9:15 – 9:30 am:           Next Step/Face Forward Musical Performance

9:30-9:35 am:             Welcome (Susan Waisbren, PhD, Boston Children’s Hospital)

9:35-10:15 am:           Brief Reports #1(Adult Survey-Farrah Rajabi MD; Quality Improvement Initiatives for Metabolic Disorders—Peter Antal, PhD and Olaf Bodamer, MD)

10:15-10:30 am:        Break and Tour of Exhibits

10:30-11:30 am:        Keynote Address: Mark Korson, MD- A NEW METABOLISM   ERA: This isn’t your grandpa’s metabolic clinic!

11:30-12:00 pm:        Reports from the Directors or other representatives from each of the Metabolic Clinics:  What’s new and interesting?

12:00-1:00 pm:          Group Picture, Lunch and Tour of Industry Exhibits

1:00-1:30 pm:            Advances in Lysosomal Disorders:  Olaf Bodamer, MD

1:30-2:00 pm:            State Reports

2:00-2:20 pm:          Brief Reports #2 (Life of a Metabolic Provider with PKU—Brittany Holmes, NP; NECPAD update Nicole Dyer-Gavin)

2:20-3:15 pm:           Group Discussions (Breakout sessions)

  • Nutrition (Leslie Martell, RD)
  • Medical (Olaf Bodamer, MD)
  • Public Health (Cindy Ingham, RN)
  • Transition to Adult Healthcare (Susan Waisbren, PhD)

3:15-3:30 pm:            Wrap-up, QI Questionnaire, and Evaluations