PKU Toolkit - A Guide to PKU Management for Teens and Young Adults - Produced by Children's Hospital Boston, Applied Nutrition, and the New England Consortium of Metabolic Programs
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Resources

PKU ResourcesThere are many websites and resources out there for you to learn more about PKU and its treatment.

Here are some places to start:

National PKU Alliance:
http://npkua.org/

The New England Connection for PKU & Allied Disorders:
http://www.necpad.org/

The New England Consortium of Metabolic Programs:
http://newenglandconsortium.org/

University of Washington. PKU Clinic
http://depts.washington.edu/pku/

The Mid-Atlantic Connection for PKU and Applied Disorders, Inc.
http://www.macpad.org/

Your Genes, Your Health
http://ygyh.org/pku/whatisit.htm

Dietary Specialties
http://www.dietspec.com

Nutricia
http://www.shsna.com/

Don’t be overwhelmed by the amount of information out there. Try to find resources that interest you the most. You have time to gather the information you need!

 

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