Members of the New England Consortium of Metabolic Programs organize family weekends throughout the New England area for kids and teens with metabolic disorders, and for their families.
These weekend events are a chance for patients and families to get together for fun, self-esteem-building activities, and to share information and support.
Here are some photos from Family Weekends
Here are regional contacts for you to find out about Family Weekends and other events in your area:
Connecticut – contact Robin Schwartz, firstname.lastname@example.org
Maine – contact MaryAnn Gordon, parent, email@example.com
Massachusetts – Fran Rohr, Boston Children’s Hospital, firstname.lastname@example.org
NECPAD – New England Connection for PKU and Allied Disorders, activities page