Members of the New England Consortium of Metabolic Programs organize family weekends throughout the New England area for kids and teens with metabolic disorders, and for their families.
At the top of Mt. Battie, Camden Hills State Park, ME
These weekend events are a chance for patients and families to get together for fun, self-esteem-building activities, and to share information and support.
Here are some photos from Family Weekends
Maine Families Picnic, Camden Hills
PKU Camp 2003 – South Shore YMCA
Connecticut Family Weekend
Here are regional contacts for you to find out about Family Weekends and other events in your area:
Connecticut – contact Robin Schwartz, rschwartz@up.uchc.edu
Maine – contact MaryAnn Gordon, parent, mpgordon@maine.rr.com
Massachusetts – Fran Rohr, Children’s Hospital Boston, frances.rohr@childrens.harvard.edu
NECPAD – New England Connection for PKU and Allied Disorders, activities page
The New England Consortium also hosts a special summer-camp event for teens called Teen Challenge. Information and photos are here.
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