The Boston Children’s Hospital Transition Toolkit was created for teenagers who are transitioning to adulthood, and who are ready to be in charge of managing their metabolic condition and their health in general. The toolkit includes basic FAQs about various metabolic conditions, a health summary form for teens to fill out and keep in a safe place, and a transition plan for teens to discuss and fill out with their primary care provider and metabolic specialist.

Use the following forms to help achieve your medical care transition:

What am I supposed to do with these forms?

Measure your health independence by taking the Health Readiness Assessment and over time try to answer yes to every question.

Read up on your Metabolic Condition Basics and discuss possible adult-health problems with your doctors or nurses.

Ask a doctor or social worker for help filling out the Medical Health Summary and Transition Plan and at your next appointment

Save these forms on your computer and USB flash drive and bring the Transition Toolkit to every medical appointment.

Keep the flash drive in your wallet or purse and save any changes or updates.

How will The Transition Toolkit help me?

With the toolkit you can:

Decide when you’re ready to act as your own health spokesperson.

Prepare for doctor’s appointments and fill out health forms.

Talk to doctors and nurses about your medical condition and what roles they should play in your medical care.

Keep track of all of your important medical and condition information.

To get started, fill out the Health Readiness form 

This project was developed at Boston Children’s Hospital by Alison Logan, MA, and Susan Waisbren, PhD, Director of the New England Consortium of Metabolic Programs, with additional writing and editing by Freedom Baird, MA. The project was supported by the New England Genetics Collaborative and their cooperative agreement with the US Health Resources and Services Administration (HRSA), grant number U22MC10980.